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Leiomyomatosis

Last edited: 4/14/2026

Overview

Leiomyomatosis refers to the proliferation of smooth muscle cells in various tissues, including the skin, lungs, and gastrointestinal tract, often associated with specific syndromes or as a primary idiopathic condition. 234

Diagnosis

  • Clinical Presentation: Multiple cutaneous leiomyomas may indicate hereditary leiomyomatosis and renal cell cancer syndrome (Reed syndrome) 2.
  • Imaging: Characteristic radiological features can help diagnose pulmonary lymphangio-leiomyomatosis 3.
  • Biopsy: Histopathological examination is essential for confirming leiomyomatosis in affected organs like the colon and mesentery 4.
  • Genetic Testing: Considered for syndromes like Reed syndrome to identify specific mutations 2.
  • Management

  • Hormonal Therapy: Withdrawal of estrogen therapy can be effective in managing hormone-dependent conditions like pulmonary lymphangio-leiomyomatosis 3.
  • Surgical Interventions: Pleurodesis may be necessary for recurrent chylothorax 3.
  • Supportive Care: Management of symptoms and complications as they arise, tailored to the specific organ involvement 4.
  • Special Populations

  • Hormonal Influences: Hormone replacement therapy can exacerbate conditions like pulmonary lymphangio-leiomyomatosis in women with primary amenorrhea 3.
  • Congenital Associations: Leiomyomatosis can coexist with congenital malformations and intracranial meningiomas, suggesting a broader genetic or developmental context 4.
  • Key Recommendations

  • Genetic Evaluation for Cutaneous Leiomyomas: Evaluate patients with multiple cutaneous leiomyomas for hereditary leiomyomatosis and renal cell cancer syndrome to guide malignancy screening 2 (Evidence: Moderate).
  • Withdraw Estrogen Therapy in Hormone-Dependent Cases: Consider withdrawal of estrogen therapy in patients with hormone-dependent leiomyomatosis to manage symptoms 3 (Evidence: Weak).
  • Surgical Management for Symptomatic Lesions: Employ surgical interventions such as pleurodesis for recurrent complications like chylothorax 3 (Evidence: Weak).
  • References

    1 Gumucio JP, Qasawa AH, Ferrara PJ, Malik AN, Funai K, McDonagh B et al.. Reduced mitochondrial lipid oxidation leads to fat accumulation in myosteatosis. FASEB journal : official publication of the Federation of American Societies for Experimental Biology 2019. link 2 Da Silva DM, Roth RR, Simpson CL. Teledermatology leading to an important diagnosis in an underserved clinic. Dermatology online journal 2018. link 3 Sridhar M, Boyle I, Banham S. Recurrent chylothorax in a woman with primary amenorrhoea. Postgraduate medical journal 1994. link 4 Spaun E, Nielsen L. Leiomyomatosis of the colon and mesentery: report of a case. The American journal of gastroenterology 1986. link

    Original source

    1. [1]
      Reduced mitochondrial lipid oxidation leads to fat accumulation in myosteatosis.Gumucio JP, Qasawa AH, Ferrara PJ, Malik AN, Funai K, McDonagh B et al. FASEB journal : official publication of the Federation of American Societies for Experimental Biology (2019)
    2. [2]
      Teledermatology leading to an important diagnosis in an underserved clinic.Da Silva DM, Roth RR, Simpson CL Dermatology online journal (2018)
    3. [3]
      Recurrent chylothorax in a woman with primary amenorrhoea.Sridhar M, Boyle I, Banham S Postgraduate medical journal (1994)
    4. [4]
      Leiomyomatosis of the colon and mesentery: report of a case.Spaun E, Nielsen L The American journal of gastroenterology (1986)

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