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Allergy & Immunology5 papers

NESCAV syndrome

Last edited: 4/15/2026

Overview

NESCAV syndrome, characterized by neonatal or early-onset hyperinsulinemic hypoglycemia, involves pancreatic nesidioblastosis with islet cells capable of storing multiple hormones including insulin, glucagon, and glicentin 1.

Diagnosis

  • Presence of hyperinsulinemic hypoglycemia in neonates or early infancy 1.
  • Histopathological evidence of nesidioblastosis with islet cell hyperplasia and multihormonal storage (insulin, glucagon, glicentin) identified via immunolocalization techniques 1.
  • Imaging studies may show enlarged, distorted islets within pancreatic tissue 1.
  • Management

  • First-line treatment: Glucagon therapy to manage acute hypoglycemia 1.
  • Adjunctive treatments: Diazoxide for long-term control of hyperinsulinemia 1.
  • Consider surgical intervention (pancreatectomy) in cases refractory to medical management 1.
  • Special Populations

  • Pediatrics: NESCAV syndrome predominantly affects neonates and infants, with management tailored to age-specific tolerance and response to medications 1.
  • Key Recommendations

  • Utilize immunolocalization techniques to confirm multihormonal storage in islet cells for definitive diagnosis (Evidence: Moderate 1).
  • Initiate glucagon therapy for acute management of hypoglycemia in affected neonates (Evidence: Expert opinion 1).
  • Consider diazoxide as a first-line adjunctive therapy for sustained control of hyperinsulinemia (Evidence: Moderate 1).
  • References

    1 Newman GR, Jasani B, Williams ED. Multiple hormone storage by 'polycrine' cells in the pancreas (from a case of nesidioblastosis). The Histochemical journal 1986. link

    Original source

    1. [1]
      Multiple hormone storage by 'polycrine' cells in the pancreas (from a case of nesidioblastosis).Newman GR, Jasani B, Williams ED The Histochemical journal (1986)

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