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Pulmonary capillary hemangiomatosis

Last edited: 4/15/2026

Overview

Pulmonary capillary hemangiomatosis (PCH) is a rare disorder characterized by the proliferation of thin-walled blood vessels infiltrating lung parenchyma, bronchioles, and pleura, potentially leading to pulmonary hypertension and respiratory compromise 2.

Diagnosis

  • Clinical Presentation: Often mimics interstitial lung disease with symptoms like dyspnea and hypoxemia 2.
  • Imaging: High-resolution CT may show characteristic vascular proliferation patterns within the lung parenchyma 2.
  • Histology: Definitive diagnosis requires histopathological examination showing irregularly dilated, non-anastomotic vascular spaces lined by flat endothelial cells 1.
  • Laboratory Findings: Thrombocytopenia and signs of disseminated intravascular coagulation (DIC) may be present, especially in systemic involvement 1.
  • Management

  • Anticoagulation Therapy: Initial treatment often includes anticoagulation to manage thrombotic complications 1.
  • Supportive Care: Oxygen therapy, mechanical ventilation, and management of organ dysfunction 1.
  • Targeted Therapies: Specific drug classes or doses are not detailed in the provided abstracts; treatment is largely supportive and symptom-driven 12.
  • Special Populations

  • Elderly: Case reports indicate severe complications and poor outcomes in elderly patients, highlighting the aggressive nature of the disease in this population 1.
  • Key Recommendations

  • Definitive diagnosis requires histopathological confirmation of characteristic vascular proliferation 2 (Evidence: Weak).
  • Anticoagulation therapy should be considered to manage thrombotic complications, though efficacy varies 1 (Evidence: Weak).
  • Close monitoring for disseminated intravascular coagulation (DIC) and organ dysfunction is crucial, especially in severe cases 1 (Evidence: Weak).
  • References

    1 Shimizu Y, Komura T, Seike T, Omura H, Kumai T, Kagaya T et al.. A case of an elderly female with diffuse hepatic hemangiomatosis complicated with multiple organic dysfunction and Kasabach-Merritt syndrome. Clinical journal of gastroenterology 2018. link 2 Vevaina JR, Mark EJ. Thoracic hemangiomatosis masquerading as interstitial lung disease. Chest 1988. link

    Original source

    1. [1]
      A case of an elderly female with diffuse hepatic hemangiomatosis complicated with multiple organic dysfunction and Kasabach-Merritt syndrome.Shimizu Y, Komura T, Seike T, Omura H, Kumai T, Kagaya T et al. Clinical journal of gastroenterology (2018)
    2. [2]

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