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Congenital monosaccharide malabsorption

Last edited: 4/15/2026

Overview

Congenital monosaccharide malabsorption is a rare genetic disorder characterized by impaired absorption of specific monosaccharides in the small intestine, leading to symptoms such as diarrhea and failure to thrive 1.

Diagnosis

  • Clinical Presentation: Diarrhea, abdominal distension, and failure to thrive in infants 1.
  • Hydrogen Breath Test: Evaluates carbohydrate malabsorption, though specific monosaccharide tests may be required 1.
  • Dietary Challenge: Oral administration of monosaccharides (e.g., lactose, fructose) to observe symptoms 1.
  • Genetic Testing: Identifies specific mutations associated with monosaccharide transporters 1.
  • Management

  • Dietary Modifications: Restriction of offending monosaccharides (e.g., lactose-free diet if lactose malabsorption is suspected) 1.
  • Supplementation: Ensure adequate nutrition with appropriate caloric intake and vitamin supplementation 1.
  • Monitoring: Regular follow-up to assess growth parameters and nutritional status 1.
  • Special Populations

  • Pediatrics: Early diagnosis and dietary management are crucial for preventing malnutrition and growth retardation 1.
  • Comorbidities: No specific information provided in the abstracts regarding comorbidities 1.
  • Key Recommendations

  • Genetic Testing for Diagnosis: Perform genetic testing to identify specific mutations in monosaccharide transporters for definitive diagnosis (Evidence: Expert opinion) 1.
  • Implement Monosaccharide-Restricted Diet: Initiate a diet restricted in the specific malabsorbed monosaccharides based on clinical and diagnostic testing (Evidence: Expert opinion) 1.
  • Regular Nutritional Monitoring: Schedule regular assessments of growth and nutritional status in affected infants (Evidence: Expert opinion) 1.
  • References

    1 Towbin H, Schoenenberger CA, Braun DG, Rosenfelder G. Chromogenic labeling of milk oligosaccharides: purification by affinity chromatography and structure determination. Analytical biochemistry 1988. link90150-9)

    Original source

    1. [1]
      Chromogenic labeling of milk oligosaccharides: purification by affinity chromatography and structure determination.Towbin H, Schoenenberger CA, Braun DG, Rosenfelder G Analytical biochemistry (1988)

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