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Stiff-person syndrome

Last edited: 4/15/2026

Overview

Stiff-person syndrome (SPS) is a rare neurological disorder characterized by progressive stiffness and spasms of axial and proximal limb muscles, often associated with rigidity and a heightened sensitivity to external stimuli 12.

Diagnosis

  • Clinical presentation includes progressive stiffness, spasms, and heightened reflexes 12.
  • Electromyography (EMG) may show continuous muscle activity and exaggerated reflex responses 2.
  • Autoantibodies against glutamic acid decarboxylase (GAD) are frequently present but not diagnostic on their own 1.
  • Management

  • First-line treatments: Baclofen, either oral or intrathecal, is commonly used to manage symptoms 1.
  • Adjunctive therapies: Benzodiazepines can be used to control spasms, though long-term use requires caution due to potential side effects 1.
  • Intrathecal baclofen: Requires careful monitoring for catheter complications; noninvasive checks may not detect leaks 1.
  • Special Populations

  • Drug interactions: Caution with medications like isotretinoin, which may trigger or exacerbate SPS symptoms 2.
  • Resolution with cessation: Symptoms may resolve upon discontinuation of triggering agents like isotretinoin 2.
  • Key Recommendations

  • Monitor intrathecal baclofen therapy closely for catheter-related complications, as noninvasive methods may be insufficient 1 (Evidence: Weak).
  • Consider drug-induced etiology in patients presenting with acute SPS symptoms, especially following initiation of new medications like isotretinoin 2 (Evidence: Weak).
  • Utilize benzodiazepines cautiously as adjunctive therapy for spasms in SPS, balancing efficacy with potential side effects 1 (Evidence: Moderate).
  • References

    1 Bardutzky J, Tronnier V, Schwab S, Meinck HM. Intrathecal baclofen for stiff-person syndrome: life-threatening intermittent catheter leakage. Neurology 2003. link 2 Chroni E, Sakkis T, Georgiou S, Monastirli A, Pasmatzi E, Paschalis C et al.. Stiff-person syndrome associated with oral isotretinoin treatment. Neuromuscular disorders : NMD 2002. link00118-9)

    Original source

    1. [1]
      Intrathecal baclofen for stiff-person syndrome: life-threatening intermittent catheter leakage.Bardutzky J, Tronnier V, Schwab S, Meinck HM Neurology (2003)
    2. [2]
      Stiff-person syndrome associated with oral isotretinoin treatment.Chroni E, Sakkis T, Georgiou S, Monastirli A, Pasmatzi E, Paschalis C et al. Neuromuscular disorders : NMD (2002)

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