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Pediatrics8 papers

Deafness and hypogonadism syndrome

Last edited: 4/16/2026

Overview

Deafness and hypogonadism syndrome, often overlapping with conditions like Keratitis-Ichthyosis-Deafness (KID) syndrome, is a rare congenital disorder primarily affecting ectodermal derivatives, characterized by severe ichthyosis, corneal keratitis, profound sensorineural deafness, and often hypogonadism 1.

Diagnosis

  • Clinical Presentation: Diffuse hyperkeratotic erythroderma, recurrent corneal keratitis with neovascularization, severe neurosensory hearing loss, and hypogonadism 1.
  • Genetic Testing: Consideration for genetic analysis to identify specific mutations associated with KID syndrome, though specific tests are not detailed in the abstract 1.
  • Ophthalmologic Evaluation: Regular corneal examinations to monitor keratitis progression 1.
  • Hearing Assessment: Audiometry to confirm sensorineural hearing loss 1.
  • Endocrinological Testing: Hormonal assessments to evaluate hypogonadism 1.
  • Management

  • Topical Treatments: Emollients and keratolytics for managing ichthyosis 1.
  • Antibiotics/Antivirals: For recurrent corneal infections secondary to keratitis 1.
  • Hearing Aids/Cochlear Implants: To address hearing loss 1.
  • Hormonal Replacement Therapy: Testosterone or other appropriate hormones for managing hypogonadism 1.
  • Regular Monitoring: Frequent follow-ups for skin, ocular, and endocrine complications 1.
  • Special Populations

  • Pediatrics: Early intervention for hearing loss and skin care is crucial 1.
  • Comorbidities: Management of corneal neovascularization and infections requires vigilant ophthalmologic care 1.
  • Key Recommendations

  • Conduct comprehensive clinical evaluations including dermatological, ophthalmological, and audiological assessments for diagnosis 1 (Evidence: Moderate).
  • Implement regular topical therapy and monitor for infections to manage ichthyosis and keratitis 1 (Evidence: Moderate).
  • Provide appropriate hearing assistive devices and consider hormonal replacement therapy for hypogonadism 1 (Evidence: Moderate).
  • References

    1 Koné-Paut I, Hesse S, Palix C, Rey R, Rémédiani K, Garnier JM et al.. Keratitis, ichthyosis, and deafness (KID) syndrome in half sibs. Pediatric dermatology 1998. link

    Original source

    1. [1]
      Keratitis, ichthyosis, and deafness (KID) syndrome in half sibs.Koné-Paut I, Hesse S, Palix C, Rey R, Rémédiani K, Garnier JM et al. Pediatric dermatology (1998)

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